Patient Resources

 
 
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This is a list of resources for patients about the importance of getting tested for HCV, where to get support, and where to get support paying for treatment.

What you'll find on this page:

Introduction

Navigating Hepatitis C: What Patients Need to Know
This NVHR webinar covered the most important elements that patients need to know regarding screening, access to care, receiving and paying for treatment, and living with hepatitis C.

Hepatitis C: Why Baby Boomers Should Get Tested
This two-page fact sheet, created by CDC, provides a quick overview of why Baby Boomers should get tested for hepatitis C.

CDC Patient Education Resources
These materials include CDC fact sheets on hepatitis A, B, and C, as well as information on specific populations at risk for viral hepatitis, with specific information on why all Baby Boomers should get tested for hepatitis C.

Testing

Hepatitis C Testing Facilities
This map, from our partners at Caring Ambassadors, lists facilities offering free or low cost hepatitis C screening services for those with limited resources due to lack of health insurance, lack of coverage for such testing, and/or limited financial resources.

Fibroscan Locations
This map list state-by-state resources to help patients find a facility with a FibroScan.

Support for Patients

Clinician Consultation Center
Since 1991, the Clinician Consultation Center has provided clinical advice about the management of patients with HIV and HIV/HCV co-infection. Their free and confidential services (including telephone consultations) are based on federal guidelines and best clinical practice.

Hepatitis C Awareness for Gay Men          Project Inform developed this article covering hepatitis C (HCV) testing, sexual transmission of HCV, how to reduce HCV transmission risk, and PrEP and HCV.

Hepatitis C and Baby Boomers Presentation  
AIDS Resource Group developed this presentation on hepatitis C and Baby Boomers for a community senior center. The PowerPoint covers how and why to screen Baby Boomers for hepatitis C, educational information about hepatitis C, and treatment options.

HCV Advocate - Living Well with Hepatitis C
HCV Advocate’s website provides information and a printable brochure to help newly diagnosed patients, fact sheets with treatment-related information, disability benefits, and links to support groups.

Help-4-Hep
Help-4-Hep is a non-profit, peer-to-peer helpline where counselors work with patients to meet the challenges of hepatitis C head-on. Callers talk one-to-one with a real person, typically someone whose life has been touched by hepatitis C. The phone call, support and information are all provided free of charge.

The Hepatitis C Mentor & Support Group, Inc.
The Hepatitis C Mentor and Support Group addresses a lack of supportive services for people living with hepatitis C and HIV. We provide educational support groups and patient mentoring services, which improve the quality of life, as well as medical results, for individual patients.

HealthMap Vaccine Finder
HealthMap Vaccine Finder is a free, online service where users can search for locations that offer immunizations. They work with clinics, pharmacies, and health departments to provide accurate and up-to-date information about vaccination services. 

Patient Advocate Foundation Hepatitis C Careline and Co-Pay Relief
The Patient Advocate Foundation offers a CareLine and Co-Pay Relief to those living with hepatitis C.

  • The Hepatitis C CareLine provides individualized sustained assistance to patients diagnosed with hepatitis C to help them resolve health care access and insurance issues.

  • The Co-Pay Relief (CPR) program offers patients direct financial assistance to help them better afford their prescribed treatment and medications.

Strategies for Hepatitis C Access
This NVHR webinar covered strategies for attaining access to treatment for patients living with hepatitis C.

Hep Forums
HEP Forums, an initiative of HepMag, an online discussion forum for people living with hepatitis B, C or a co-infection, and for their friends and family and others with questions about hepatitis and liver health.

Patient Access Network Foundation
The Patient Access Network Foundation helps underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Patient Assistance Programs

PAN Foundation brochure
The Patient Access Network (PAN) Foundation offers free financial assistance for patients with Hepatitis B and Hepatitis C. Read this brochure to learn about your options.

Hepatitis PAP and Co-Pay Programs
This HepMag blog post discusses how assistance may be available from pharmaceutical companies and other organizations in the form of co-pay programs and patient assistance programs (PAPs).

Patient Advocate Foundation Co-Pay Relief
The Patient Advocate Foundation (PAF) Co-Pay Relief (CPR) provides direct financial assistance to qualified patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis. CPR call counselors work directly with the patient as well as with the provider of care to obtain necessary medical, insurance and income information to advance the application in an expeditious manner.

NeedyMeds Resources
This site provides a state-by-state list of diagnosis-based assistance programs for people with hepatitis C.

Clinical Information

HCV Guidelines: Recommendations for Testing, Managing & Treating HCV
The American Association for the Study of Liver Diseases (AASLD) and the Infectious Diseases Society of America (IDSA) developed a web-based process to disseminate evidence-based recommendations for healthcare providers concerning hepatitis C management.

Medications to Treat HCV
This site, from the University of Washington, provides drug summaries, clinical studies, and slide decks for hepatitis C medications.

Hepatitis C: A Growing Threat to the Latino Community
Hepatitis Foundation International compiled this fact sheet, which describes how hepatitis C disproportionately affects the Latino community.

Facts on African Americans and Hepatitis C
This fact sheet on African Americans and hepatitis C was compiled by the Office of HIV/AIDS and Infectious Disease Policy.

Living with Liver Disease - Resources from Alaska Native Tribal Health Consortium (ANTHC)
The ANTHC conducts activities that will serve to improve the health of Alaska Native and American Indian persons who either have or are at risk of getting viral hepatitis or other liver diseases.