Community Sign-on: All People With Hepatitis C Deserve Lifesaving Treatment

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In response to the escalating crisis in access to new, lifesaving hepatitis C medications, a coalition of organizations and medical providers (see list below) has developed the following sign-on statement. Everyone living with hepatitis C who wants to be treated and cured should have access to treatment without barriers. This statement calls on all stakeholders to work together on a solution that ends the current practice of rationing hepatitis C treatment and sends a strong statement that all lives are worth saving.




The undersigned organizations, medical providers, and community members are alarmed by the escalating crisis in access to new lifesaving hepatitis C treatments. These drugs have the potential to help us end the hepatitis C epidemic and save thousands of lives. Although the Affordable Care Act recently helped millions of Americans gain access to health coverage, many for the first time, the ACA mandate that no individual be denied insurance based on a pre-existing condition is meaningless if that coverage restricts access to the treatment needed to cure that condition.  Policies that deny access to new, highly effective hepatitis C treatment altogether or limit treatment only to the sickest patients violate laws that now ban discrimination against specific patient populations.  They also undermine our ability to address health inequities and disparities, particularly among communities of color, which are more likely to face barriers to health care access and have disproportionally higher hepatitis C prevalence.


The FDA approval of highly promising hepatitis C treatments last year brought tremendous hope, as it marked the beginning of a new era in treating and curing the disease. With high cure rates, significantly reduced side effects compared to previous regimens, and shorter treatment durations compared to previous regimens, these new therapies, along with others in the pipeline, provide an opportunity to end needless suffering and death from extrahepatic conditions, end-stage liver disease, and liver cancer, while reducing and potentially eliminating new infections. Twenty-five years after the discovery of the hepatitis C virus, the tools are now available to eliminate a chronic, infectious, life-threatening disease that, according to data from the Centers for Disease Control and Prevention needlessly hastens the death of 15,000 to as many as 50,000 Americans per year.


We are therefore united in our call to all stakeholders, including public and private payers, the pharmaceutical industry, and government to work together to eliminate the barriers that have caused rationing of hepatitis C treatment:


1.      Hepatitis C pharmaceutical companies must commit to affordable pricing, broad accessibility, and transparent, good-faith negotiations with payers;

2.      Stakeholders must engage members of the patient, provider, and advocacy community in a process to address access barriers and to minimize consumer cost-sharing obligations;

3.      Payers must ensure that individuals who inject drugs, the group most at risk for new infections, are not systemically excluded from treatment; and

4.      We must send a strong message to all people with hepatitis C:  they deserve to be cured and that everything is being done to end the current rationing of treatment.


In addition, no utilization management or prior authorization requirements must be put in place by public or private payers except when it can be demonstrated that such restrictions are developed through a transparent process that:


a.       Is in accordance with clinical factors and not just cost effectiveness;

b.      Involves consultation with recognized hepatitis C medical experts; 

c.       Includes meaningful input from the hepatitis C patient and advocate community; and

d.      Requires each payer to maintain an exceptions process for any individual to appeal a denial of access based on their specific individual circumstances.


The only way we will stop the treatment access crisis is for all stakeholders to come to the table and develop solutions. The federal government, through its role in implementing the Affordable Care Act and ensuring access to affordable, quality care for all Americans has a responsibility to ensure that these discussions happen quickly, transparently, and with meaningful input from leading hepatitis C medical experts, community leaders, and, most importantly, people with hepatitis C.  


Eliminating hepatitis C in the United States would be one of the greatest public health achievements of the 21st century. The question is not can we eliminate the virus, but do all stakeholders have the will to come together and develop real solutions. As a community, we will not rest until hepatitis C is eliminated, and we are committed to working with all stakeholders to achieve this goal. All people living with or at risk for hepatitis C, along with their families, their friends and their loved ones deserve no less.


Original signatures:


Medical Providers:


Brian R, Edlin, MD, FACP, FIDSA

Department of Medicine, Weill Cornell Medical Center, New York, NY


Robert Gish, MD

Vice Chair

National Viral Hepatitis Roundtable


Camilla Graham, MD

Beth Israel Deaconess Medical Center





Caring Ambassadors Program, Inc.

Family Health Centers of San Diego

Global Liver Institute

Harm Reduction Coalition

Hepatitis Education Project

Hepatitis C Mentor & Support Group, Inc.

National Alliance of State and Territorial AIDS Directors

National Viral Hepatitis Roundtable

Project Inform

Treatment Access Expansion Project


Signatures (as of 8/18/14):


AECOM – Bronx, NY

AIDS Action Baltimore – Baltimore, MD

AIDS Action Committee of MA – Boston, MA

AIDS Alliance for Women, Infants, Children, Youth & Families -- Washington, DC

AIDS Foundation of Chicago – Chicago, IL

AIDS Legal Council of Chicago – Chicago, IL

AIDS Network of Western New York – Buffalo, NY

AIDS Research Consortium of Atlanta – Atlanta, GA

AIDS United -- Washington, DC

ALRP – San Francisco, CA

Albuquerque Department of Health -- Albuquerque, NM

American Academy of HIV Medicine -- Washington, DC

American Liver Foundation -- New York, NY

American Sexual Health Association – Silver Spring, MD

Asian American Health Coalition – Houston, TX

Asian Health Coalition – Chicago, IL

Aspirations – Baton Rouge, LA

Association for Behavioral Healthcare of Massachusetts – Natick, MA

Association of Asian Pacific Community Health Organizations – Washington, DC

Association of Nurses in AIDS Care -- Akron, OH

AZ Hepatitis C Coalition -- Casa Grande, AZ

Baltimore Student Harm Reduction Coalition – Baltimore, MD

Black AIDS Institute -- Los Angeles, CA

BOOM!Health -- Bronx, NY

Boulder County AIDS Project – Boulder, CO

CA Chronic Care Coalition -- Sacramento, CA

C.O.P.E. -- Brooklyn, NY

C.O.R.E. Medical Clinic, Inc. – Sacramento, CA

California Hepatitis Alliance (CalHEP) -- San Francisco, CA

California Hepatitis C Task Force -- Petaluma, CA

CARE & CARE – Chicago, IL

Cascade AIDS Project – Portland, OR

Casper Connection – Casper, WY

Chicago Recovery Alliance – Chicago, IL

Cincinnati Exchange Project – Cincinnati, OH

CNY HIV Care Network -- Rome, NY

Community Access National Network - HEPATITIS, Education, Advocacy & Leadership (HEAL) Coalition – Washington, DC

Community Liver Alliance -- Pittsburgh, PA

Community Research Initiative – Boston, MA

Government of Western Australia Department of Health – East Perth WA, Australia

Digestive Disease National Coalition -- Lantana, FL

Division of General Internal Medicine HCV Clinical and Research Program -- New York, NY  

Downtown Manhattan HCV Support Group – Delancy, NY

Family and Medical Counseling Service, Inc. – Washington, DC

Family Health Centers of San Diego – San Diego, CA

First Nations Community HealthSource -- Albuquerque, NM

Forum for Collaborative HIV Research -- Washington, DC

Franklin County Health Department – Union, MO

Frederick County Hepatitis Clinic, Inc. – Frederick, MD

Global Liver Institute – Washington, DC

Greater Washington Viral Hepatitis Support Group – Silver Spring, MD

H.E.A.L.S of the South – Tallahassee, FL

Harlem United -- New York, NY

Harm Reduction Action Center – Denver, CO

Harm Reduction Services – Sacramento, CA

Hawaii Island HIV/AIDS Foundation – Hilo, HI

HCV & HBV O'Connor Hospital Support Group – Delancy, NY

HCV Advocate – Grass Valley, CA

HCV Coalition for the Cure -- San Antonio, TX

Health Care for All – Massachusetts – Boston, MA

HealthHIV – Washington, DC

HealthPro Solutions – Fort Lauderdale, FL

Hep B United -- Washington, DC

Hep C Alliance – Columbia, MO

Hep C Allies of Philadelphia – Philadelphia, PA

Hep C Connection – Denver, CO

Hepatitis B Foundation – Doylestown, PA

Hepatitis B Initiative of Washington, D.C. – Washington, DC

Hepatitis C Association – Scotch Plains, NJ

Hepatitis C Education and Liver Screening (HEALS) Program at Mount Sinai -- New York, NY

Hepatitis C Program, Albert Einstein College of Medicine, Division of Substance Abuse – Bronx, NY

Hepatitis C Support Project / HCV Advocate – Sacramento, CA

Hepatitis Education Project – Seattle, WA

Hepatitis Foundation International – Silver Spring, MD

Hepatitis Support Network of Hawaii – Honolulu, HI

HepCWebWarriors – Salina, KS

HepTREC – Philadelphia, PA

HIV Medicine Association – Arlington, VA

HIV Prevention Justice Alliance – Chicago, IL

HIV/AIDS Resource Center – Ann Arbor, MI

Icahn School of Medicine at Mount Sinai -- New York, NY

Immunization Action Coalition -- Saint Paul, MN

K.I. Services, Inc. – Alexandria, VA

Lifelong – Seattle, WA

Little Sandy Health Department – Grayson, KY

LiverHope -- Minnetonka, MN

Maryland Hepatitis Coalition -- Riva, MD

Massachusetts Viral Hepatitis Coalition – Boston, MA

Mendocino County AIDS/Viral Hepatitis Network – Ukiah, CA

Metro Detroit & Suburbs Hep C Support Group & Info Hotline – Detroit, MI

NASEN – Takoma, WA

National Association of Hepatitis Task Forces -- Petaluma, CA

National Minority AIDS Council – Washington, DC

National Health Care for the Homeless Council -- Nashville, TN

New Mexico Hepatitis C Coalition -- Albuquerque, NM

New York Buyers’ Club -- New York, NY

New York Harm Reduction Educators (NYHRE) – Bronx, NY

North Carolina Harm Reduction Coalition – Asheville, NC

North Shore Health Project -- Gloucester, MA

OAAHC – Columbus, OH

OASIS – Panama City Beach, FL

Ohio Asian American Health Coalition -- Columbus, OH

Prevention Point Pittsburgh -- Pittsburgh, PA

Project SAFE -- Philadelphia, PA

Rhode Island Public Health Institute – Providence, RI

Robins Haven of Hope – Houston, TX

S.T.O.P. Hepatitis Task-Force – Sacramento, CA

Samaritan Ministry – Knoxville, TN

San Francisco Hepatitis C Task Force – San Francisco, CA

San Luis Obispo Co. AIDS Support Network / SLO Hep C Project – San Luis Obispo, CA

Santa Barbara Neighborhood Clinics -- Santa Barbara, CA

Scales Pharmacy – Denver, CO

Sinai Hospital – Baltimore, MD

Southwest CARE Center – Santa Fe, NM

St. Ann’s Corner of Harm Reduction -- Bronx, NY

START at Westminster – Washington, DC

STOPHepC Program of STOP2START Foundation – West Pelzer, SC

The AIDS Institute --  Washington, DC

The CHOW Project – Honolulu, HI

The HEALTH Centre – Ann Arbor, MI

The STD Project --  Grand Rapids, MI

Total Health Care – Baltimore, MD

Treatment Action Group -- New York, NY

Trust for America's Health --  Washington, DC

UHAP / Upstate Hepatitis C Awareness Project – Delancey, NY

University of Hawaii – Honolulu, HI

Uptown Manhattan Mt Sinai HCV Support Group – Delancey, NY

Vietnam Veterans of America – Silver Spring, MD

VOCAL New York -- Brooklyn, NY

Waikiki Health – Honolulu, HI

Washington Heights CORNER Project -- New York, NY

Women Accepting Responsibility – Baltimore, MD


MEDICAL PROVIDERS (Organizations listed for affiliation purposes only):


Judith Aberg, MD – Mount Sinai Hospital (NY, NY)

Helen Adams, PA-C – Riverdale Gastroenterology and Liver Diseases (Riverdale, NY)

Adriann Anderson

Rachel Ariola, RN – Pali Momi Medical Center (Aiea, HI)

Alice Asher, RN, MSN, CNS – University of California, San Francisco

Judy Broeckel, MD -- Fairchild Medical Clinic (Yreka, CA)

Carol L. Brosgart, MD – University of California, San Francisco

Damaris Carriero, NP – Columbia University Medical Center (NY, NY)

Christina Casson, RN -- The University of New Mexico Medical Group, Inc. (Albuquerque, NM)

James Demarest, Pharm.D -- Avella Specialty Pharmacy (Denver, CO)

Kellene Eagen, MD – San Francisco Department of Public Health (San Francisco, CA)

Benjamin Eckhardt, MD – Weill Cornell Medical Center (NY, NY)

Seun Falade-Nwulia, MBBS – Johns Hopkins Medicine (Baltimore, MD)

Judith Feinberg, MD – University of Cincinnati (Cincinnati, OH)

Beverly Foust, RN -- AZ Hepatitis C Coalition (Casa Grande, AZ)

Joel Gallant, MD, MPH – Southwest CARE Center (Santa Fe, NM)

Donna Geiger, RN, MSN, FNP -- Petaluma Health Clinic (Glen Ellen, CA)

Elizabeth Goacher, PA-C – Duke Medicine (Durham, NC)

Jim Gove, RN, BSN – Alaska Native Tribal Health Consortium (Anchorage, AK)

Janet Gripshover, CRNP – University of Maryland Medical Center (Baltimore, MD)

Trevor Hawkins, MD – Southwest CARE Center (Santa Fe, NM)

Annette Hewitt, FNP-C – Alaska Native Tribal Health Consortium (Anchorage, AK)

Camilla Hey

Beverly Jahn, LSW – Hep C Connection (Denver, CO)

Fareen Karachiwall

Margaret Lee, RN – Minnesota Department of Human Services (Fergus Falls, MN)

Stephen Livingston, MD – Alaska Native Tribal Health Consortium (Anchorage, AK)

Anne Luetkemeyer, MD – University of California, San Francisco; San Francisco General Hospital

Julie McArthur, MS, CRNP – Johns Hopkins University School of Medicine (Baltimore, MD)

Tracy McCallum – Whittier Street Health Center (Roxbury, MA)

Joseph McGowan, MD -- North Shore-LIJ Health System (Manhasset, NY)

Brian McMahon, MD – Alaska Native Tribal Health Consortium (Anchorage, AK)

Susan Negus, RN – Alaska Native Tribal Health Consortium (Anchorage, AK)

Angela Oddone, LCSW – Consultant/Private Psychotherapy Practice (Rochester, NY)

Kimberly Page, MPH, PhD -- University of New Mexico Health Sciences Center (Albuquerque, NM)

Julia Pallentino, MSN, JD, ARNP-BC – CI Associates of Tallahassee (Tallahassee, FL)

Petra Patterson, MA, LMCHA – Private Counseling Practice (Tacoma, WA)

Sujeiry Pena, NP – New York City Health and Hospitals Corporation (Bronx, NY)

Russell Perry, MD – Bronx-Lebanon Hospital Center Family Medicine (Bronx, NY)

Ponni Perumalswami, MD -- Icahn School of Medicine at Mount Sinai (NY, NY)

Vinh Pham, MD, PhD -- NYU Langone Medical Center (NY, NY)

Esther Phillips

Lucinda Porter, RN – Consultant (Grass Valley, CA)

Christian Ramers, MD, MPH – Family Health Centers of San Diego (San Diego, CA)

Humberto Reinoso, MSN, ARNP – Baptist Health South Florida (Miami, FL)

Marina Roytman, MD – The Queen’s Medical Center (Honolulu, HI)

Rosemary Sanchez– West Texas Community Supervision and Corrections Department (El Paso, TX)

Maria Cristina Sandman, RN – Frederick Primary Care Associates (Frederick, MD)

Dan Scales, Pharm. D – Scales Pharmacy (Denver, CO)

Sophie Sprecht-Walsh -- Codac Behavioral Health (Providence, RI)

Elizabeth Stone, RPH, Pharm.D -- Lincoln Medical Center (Bronx, NY)

Stephanie Straley, PA-C, MS – University of California, San Francisco Medical Center

Lynn E. Taylor, MD – Brown University; Miriam Hospital (Providence, RI)

Melanie Thompson, MD – AIDS Research Consortium of Atlanta (Atlanta, GA)

Susan Tobias, PA-C – Baltimore City Health Department; Johns Hopkins University (Baltimore, MD)

Lisa Townshend-Bulson, ANP – Alaska Native Tribal Health Consortium (Anchorage, AK)

Donna Vandegriffe, RN – Franklin County Health Department (Union, MO)

Aubree Wood




Lisa Adams

Chelsea Amato

Lynda Asher

Caroline Atti

James Atti

Ellen Awai

Diana Babcock

Jennifer Badde-Graves

Bennie Joe Balderama

Vickie Barbour

Shirley Barger

Ronald Barre

Hana Barrineau

Gwen Battaglia

Soumitri Barua

Chara Bauer

Roselin Becker

Amber Beckler

Lori Beeler

Susan Begin

Glenda Benner

Diane Bentinck

Daniel Berrner

Jeanne Block

Ken Bloom

Dan Bigg

Tom Borchart

Rosie Brandenberger

Wanda Brendle-Moss

Stanford Brent

Loretta Bridges

Bonnie Brooks

Rebecca Brooks

RoseAnn Brostoski

Sujata Burgess

Glenn Burke

Bruce Burkett

Jeff Burns

Steve Cabito

Alexandra Calderon

Marcus Calfin

Kat Callaway

Rachel Cannon

Dianne Carden

Pat Cargola

Harriet Carion

James Carone

Debra Carroll

Jose Castro

Henry Chang

Anthony Chase

Orlando Chavez

Kuan-Lung Chen

Phillip Chen

YS Chen

Randi Chidekel

Reuben Chong

Donald Christ

Harry Christensen

Rosanne Christensen

Misty Clark

James Clippinger

Lauren Cockerham-Colas

Stephanie Cockrell

Lara Coffin

Chari Cohen

Haley Coles

Charles Collins

Linda Collins

Wanda Commander

Paul Conrow

Kelly Cook

Robert Cordero

Lani Corrie

Katelyn Cox

Wilton Crane

Judith Curtis

Barbie D.

Peter Dale

Dorothy Davies

Deborah Davis

Paul Davis

Lori Dawn

Melissa Dawson

Lynda Dee

Nancy Deeley

Diane Dellicarpini

Shealagh Devlin

Elaine Diciccio

Natalie Dietz

Brian Dirsmith

John DiSanza

Susan DiSanza

Beth Dollar

Robert Domen

Mitchell Duckworth

Rae Duckworth

Margaret Dudley

Cheri Dueker

Louie Duvall

Cyndi Echols

Ed Eggleton

Deanne English

Mulugeta Ersumo

Emily Evans

Maria Evertez

Ashley Fairburn

Elizabeth Faraone

Lauren Farasati

Jessica Farmer

Jamie Favaro

John Faville

Larry Fernandez

Richard Firestone

Daniel Fitzgerald

Natalie Flath

Bonnie Forshey

Tony Forshey

Suzy Forwood

Steven Francisco

Frederick Friedland

Samuel Friedman

Sheilah Galer

Justina Gamache

John Garrett

Kimi Gatherum

Tanvi Ghonasgi

Denise Gingras

Robert Gonzales

Carolyn Gove

James Graham

Katie Grainger

Olivia Grajeda

Gus Grannan

Jeffrey Green

Josh Greenfeld

Donald Greenman

Joan Gregori

Jennifer Grinceri

Gretchen Groff

Sam Grog

Susan Groh

Rachel Gutfreund

Rob Guzman

Holly Hagan, PhD

Rob Hail

Marc Halpern

Bryn Hannon

Tom Hannon

Mike Harris

Linda Harrison

Alyson Harty

Julia Harvey

Mark Hayes

David Heaton

Cathy Heiles

Shirley Heim

Glen Henderson

Gavino Hernandez

Monique Herring

Martine Heus

Tanya Heykoop

Matthew Crehan Higgins

Julia Hill

Suesha Hill

James Hinton

Bill Hirsh

William Hodge

Edward Hodson

W.R. Holland

Josefa Holguin

Terryl Hollman

Mary Houghton

Peter Howe

Russell Howell

Emalie Huriaux

Jennifer Irani

Don Des Jarlais

Darlene Jenkins

Kaj Johansson

Ron Johnson

Gaggy Jones

Rashun Jones

Kathleen Sherman Kaurloto

Kimble Lee Kearns

Joyce Turner Keller

Roberta Keppel

George Kerr

Natalie Kil

Joan King

Marilyn Kinyon

Joshua Kirkland

Jennifer Kirschner

Marianne Kitson

Aaron Kofman

Kurt Kovach

Angela Kovaleva

Paul Krishack

Pam Langford

Steve Lapham

Kristin Larson

Kelli Lawhead

Ola Lee

Cathy Lent

Bernie Lieving

Kathleen Linde

Andrea Lindstrom

Emily Little

Adam Lord

Chris Lord

Wayne Maddox

John Madsen

Claude Maréchal

Donald Maier

Susana Maldonado

Elise Mann

Jacob Mann

Tanya Mann

Donna Marino

Brandon Marshall

Julie Marston

Lillian de Mauro

Garth McBride

John McDougall

Marilyn McDougall

Butch McKay

Jolene McKenna

Peter McLoyd

Cyndi Mears

Diane Merlo

Angela Miller

Tammy Miller

Linda Mills

Robert Miracle

Patricia Monaghan

Patricia Moncada

Sherrie Moomey

Jean Mooney

Kristi Moore

Yvonne Morales

Mary Morley

William Myers

Kalani Napihaa

Andrew Niceberg

Betty Nudelman

Mindy O’Neal

Joshua Tiernan O'Rourke

Terry Ortega

Malulani Orton

Paul Ostrowski

Mike Pagona

Debbie Panarese

Nivedha Panneer

Joon Park

Frederick Park

Steven Parker

John Pavan

Ponni Perumalswami

Reginald Peters

Lois Petty

Stephanie Pewitt

Gary Pierce

Joanna Pierce

David Pierog

Jerry Ortiz y Pino

Karyn Pomerantz

Matthew Pritchard

Linda Pryor

Tracy Pugh

Eugene Pusey

Denny Quick

Elizabeth Ramirez

Kendra Randerson

Nancy Ravelo

Ruth Reckart

William Reef

Robert Reid

Nickolas Rex

Andrew Reynolds

Sheila Reynoso

Beatrice Rivera

Peter Robbins

Adalberto Rodriguez

Claude Rose

MJ Rosenman

Robin Roth

John Rowe

Monta Rowe

Lynn Rubin

Julie Rufo

Martha Saly

Ivonne Sanchez

Valerie Sands

Sandra Van Sant

Diana Savage

Sherry Schneider

Jimmy Schrock

Veronica Scott

Wesley Scott

Nathaniel Scruggs

Dorothy Seitz

Maddie Sellers

Tracy Sellers

Rick Shalvoy

Clara Sierra

Sue Simon

Peter Simpson

Steve Simpson

Becky Smith

Cynthia Smith

Robin Lord Smith

Wayne Smith

Shawn Smoke

Mike Snyder

Paul Sousa

Adam Spangler

Richard Spann

Martha Sparta

Andre Spell

Kathy Sprinzl

Cherise Stabler

Marilyn Stark

Cheryl Starkgraf

Arden Staroba

Mathias Staubli

Garrett Stenson

Brian Stewart

Will Stowe

Michelle Stringham

Abraham Stubenhaus

Javier Ortega Sturdivan

Pete Sturman

Alicia Suarez

Barbara Sullivan

Jerry Summers

Chip Supanich

Trenna Sykes-Hebert

Suresh Tamang

Victoria Teasdale

John Tedesco

Lewis Teixeira

Antoine Thompson

Patricia Todd

Rebecca Toner

Richard Tope

Mary Truong

Monique Tula

Sharon Vance

Frances Vanse

Jennifer Venrick

Barbara Veres

Kevin Vial

Sue Vines

Marie Waldron

Joe Walsh

Christina Wang

Miriam Warwick

Marlene Waters

Steve Waters

Judith Weinberg

Terry Welsh

Wendy Wheat-McCoy

Donna Wheeler

Teresa Whisenant

Joe Wiecha

John Wikiera

Howard Williams

Mary Wilson

Emily Winkelstein

Maureen Winthal

Michael Wisler

Jill Woehrle

Tammy Woosley

Fred Wright

Rebecca Wuenschel

Joy Yadao

Adisa Yamusah

Elisa Yates

Donna Yonash

Michelle Young

Philip Younger

Mario Zecca

Avi Zenilman

Donna Zucker