- About Us
- NVHR Hepatitis C Resources
- NVHR Hepatitis C State Specific Resources Pages
- More than Tested, Cured Project
- Hepatitis C Treatment Access
Community Partner Activities and Resources
NVHR Program Survey Summary
NVHR’s Hepatitis C Program focuses on increasing testing and linkage to care for hepatitis C among individuals born 1945—1965 (Baby Boomers) and others at risk for hepatitis C. Last October, NVHR released a Hepatitis C Program Survey, asking partners to evaluate our current resources and communicate their unique needs.
The survey received in-depth responses from 21 individuals representing organizations in fourteen states, including public health departments, community-based organizations, and advocacy coalitions addressing viral hepatitis, harm reduction, and addiction/recovery services. Respondents described successful approaches regarding hepatitis C screening for Baby Boomers, identified obstacles facing these approaches, highlighted areas for expansion, and recommended future materials to strengthen their resources. NVHR connected respondents to existing resources and created new materials in response to their requests.
Thank you to everyone who participated in the survey! The full program summary is available here.
Hepatitis C Working Group Call
NVHR also convenes a Hepatitis C Working Group to build community among groups and medical providers conducting hepatitis C screening and linkage to care and to share strategies, advice, and information.
Here are the notes from our 2016 Working Group Calls:
California Hepatitis Alliance (CalHEP)
CalHEP is a coalition of over 100 hepatitis B and C viral hepatitis experts and advocates in California. It seeks to reduce the scope and consequences of the hepatitis B and C epidemics, which disproportionately affect California’s ethnic communities and the socioeconomically underserved.
Hep C Allies of Philadelphia (HepCAP)
HepCAP is a city-wide collective dedicated to improving the continuum of hepatitis C prevention, diagnosis, care, and support services in Philadelphia. By teaming up with specialists and community members, HepCAP aims to increase awareness of hepatitis C, while improving local hepatitis C prevention, testing, and treatment services.
Hep Free Hawai’i
Hep Free Hawai’i are a coalition of local, national, and global partners dedicated to increasing viral hepatitis awareness and access to care throughout Hawaii. They connect communities and islands to make Hawaii truly “Hep Free.”
Hep Free NYC
Hep Free NYC is a network comprised of the NYC Hep B Coalition and NYC Hep C Task Force. The network brings together community based organizations, service providers, healthcare institutions, and others interested in viral hepatitis. It is coordinated by staff at the New York Health Department.
Hepatitis C Community Alliance to Test and Treat (HepCCATT)
HepCCATT is a public health collaboration working to significantly reduce the number of people with undiagnosed and untreated hepatitis C infections among Chicago’s most highly affected communities. By leveraging the strengths and diversity of our partners, HepCCATT works to significantly reduce the number of undiagnosed and untreated hepatitis C infections in Chicago—and to establish a model for public health collaborations to expand and improve hepatitis C testing and care nationwide.
Maryland Hep C Coalition
A non-profit, volunteer group of people concerned about viral hepatitis. They conduct awareness events and state-level treatment access advocacy.
Massachusetts Viral Hepatitis Coalition
The Massachusetts Viral Hepatitis Coalition is convened by the AIDS Action Committee. It is a collaboration of organizations, providers, and consumers working to increase awareness of viral hepatitis and build support for programs addressing the needs of those living with or at risk for viral hepatitis. They continue to meet and remain active in state-level advocacy.
Rhode Island Defeats Hep C (RID HepC) (not currently active)
RID HepC is a comprehensive program to Seek, Treat, Cure and Eliminate HCV in RI; reduce illness, suffering and death due to HCV in RI; save money for RI and Rhode Islanders by enhancing proactive HCV care; and bring resources into Rhode Island to help combat the HCV epidemic. RID HepC is designed with several components: Awareness, Testing to Cure, Building Infrastructure for a Sustainable Model, and Evaluation.
RID HepC created a hepatitis C toolkit for patients and providers. To view the toolkit, click here.
San Francisco Hep C Task Force
As an area hard hit by the hepatitis C epidemic, this coalition of public health organizations, educators, and civic groups to create a local response to the epidemic. The Task Force meets monthly and meetings are open to the general public.
To celebrate World Hepatitis Day, San Francisco Hep C Task Force is hosting an event on Thursday, July 28, 2016 called Think About the Link: Shining a Light on the Link Between VIral Hepatitis and Cancer. For more information about the event, click here.
The first three documents were created by the Prevention Institute, an organization dedicated to finding comprehensive, integrated approaches to solving complex health and social issues through prevention efforts that address multiple problems concurrently.
Developing Effective Coalitions: An Eight Step Guide
This step-by-step guide to coalition building helps partnerships launch and stabilize successfully. It supports advocates and practitioners in every aspect of the process-from determining the appropriateness of a coalition to selecting members, defining key elements, maintaining vitality, and conducting ongoing evaluations.
Collaboration Multiplier is an interactive framework and tool for analyzing collaborative efforts across fields. It is designed to guide an organization to a better understanding of which partners it needs and how to engage them, or to facilitate organizations that already work together in identifying activities to achieve a common goal, identify missing sectors that can contribute to a solution, delineate partner perspectives and contributions, and leverage expertise and resources.
The Tension of Turf: Making it Work for the Coalition
Successful coalitions learn to anticipate and validate turf issues as part of solidifying partnerships and gathering their full strength. It offers practical support for skillfully managing the dynamic tension that commonly arises when people collaborate. This guide helps coalitions derive authentic, constructive power from their varying perspectives, skills, and mandates.
This page lists 46 Chapters through which you can obtain practical, step-by-step guidance in community-building skills.
Association of State & Territorial Health Officials (ASTHO) Hepatitis C Birth Cohort Testing Communications Toolkit
ASTHO is working to enhance the role of state health agencies in addressing hepatitis and demonstrate the value of infrastructure and funding at the state public health level. ASTHO has collected helpful tools and background materials to help state health officials communicate about CDC's updated recommendations for Baby Boomer screening to providers and the public.
ASTHO State-Level Implementation of the Birth Cohort Hepatitis C Testing Recommendations
In collaboration with CDC birth cohort screening recommendations, ASTHO collected specific state experiences in two of the four key elements: collaborations in care and surveillance. ASTHO conducted site visits to Arkansas and Wisconsin state health departments to discuss barriers and facilitators in supporting the birth cohort-based testing recommendations; identify tools needed to support implementation of the recommendations; and collect state stories and best practices from health department viral hepatitis programs.
The following sections showcase the state’s successes and innovative approaches in collaborations in care and surveillance, and provide insights into the challenges and barriers faced during implementation.
Would you like to add your coalition to this page? Email Tina Broder, Program Director, at firstname.lastname@example.org.