Resources for Patients and Providers

 
 
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The links below provide a variety of resources, including peer helplines, webinars, and patient assistance relief programs, for patients and providers.

If you are a patient in need of education and assistance regarding accessing hepatitis C medication, please visit the Patient Advocate Foundation's Hepatitis C CareLine. It is a patient/provider hotline designed to provide assistance to patients who have been diagnosed with hepatitis C and are seeking education and access to care.

Organizations

Help-4-Hep
Help-4-Hep is a non-profit, peer-to-peer helpline where counselors work with patients to meet the challenges of hepatitis C head-on. Callers talk one-to-one with a real person, typically someone who's had hepatitis C touch their own life, about the specifics of their situation. The phone call, support and information are all provided free of charge.

Hepatitis C Mentor and Support Group
HCMSG provides patients with education on HCV and co-infection, as well as resources to help access to medications, staying healthy and dealing while waiting for treatment. The Hepatitis C Education and Support Assistance Program provides resources and services nationwide to hospitals, clinics, other organizations, including substance use communities and individuals wanting to establish or run educational patient support groups.

Hepatitis Education Project (HEP)
HEP is a nonprofit based in Washington state that provides support, education, advocacy, and direct services for people affected by hepatitis C. Their medical case management program works with clients through antibody and PCR testing, finding a primary care provider, additional liver tests, and appealing cases where people have been denied treatment. Call HEP at (206)732-0311 for more information.

Hepatitis Therapy Access Physicians Working Group
The Hepatitis Therapy Access Physicians Working Group works to ensure the perspectives of hepatologists, gastroenterologists, infectious diseases specialists and other clinicians treating patients suffering from hepatitis, are shared with policymakers considering issues impacting access to hepatitis therapies. Working Group members collaborate in the development of educational resources and participate in advocacy initiatives designed to promote informed policymaking.

HIV/HCV Co-Infection Watch
The HIV/Hepatitis C (HCV) Co-Infection Watch is a patient centric research and monthly Report effort that provides coverage information for programs designed for lower-income, at-risk, and advocacy communities. The Report provides coverage charts and maps for each U.S. state and several territories for the AIDS Drug Assistance Program, Medicaid, Veteran's Administration, and Medicare Part D Prescription Drug Plans, as well as charts for harm reduction legislation.

PAN Foundation Hepatitis C Assistance Program
The Patient Access Network (PAN) Foundation provides federally and commercially insured people living with chronic, life-threatening diseases with the out-of-pocket costs for their prescribed medications.

Patient Advocate Foundation Co-Pay Relief
The Patient Advocate Foundation’s (PAF) Co-Pay Relief Program (CPR) provides financial assistance to financially and medically qualified patients for co-payments, co-insurance and deductibles required by a patient’s insurer for pharmaceutical treatments and/or prescription medications prescribed to treat and/or manage his/her disease.

Resources

A Provider's Perspective: Management and Treatment of HCV in PWID
Dr. Stacey Trooskin gave this presentation at the United States Conference on AIDS in September 2016. The presentation outlines the prioritization of PWID in HCV treatment, treatment access for PWID, harm reduction, and secondary prevention for PWID.

American Academy of HIV Medicine One-Pager: Hepatitis C Cure Access
This one-pager from the American Academy of HIV Medicine (AAHIVM) provides a synopsis of HCV treatment access, including restrictions pertaining to fibrosis, substance use, prescriber limitations, and HIV coinfection.

American Academy of HIV Medicine Two-Pager: Prior Authorization
This one-pager from the American Academy of HIV Medicine(AAHIVM) provides an overview of prior authorization for HIV medication and the barriers it can create for patients and providers. While this document is specific to HIV, it can serve as a helpful template moving forward with HCV treatment access.

HIVMA/IDSA Treatment Access
The HCV Treatment Access page, developed by the HIV Medicine Association/Infectious Disease Society of America (HIVMA/IDSA), provides information on Medicaid coverage in each state, appeals and patient assistance information, advocacy resources, and clinical resources.

NVHR Webinar: Strategies for Hepatitis C Treatment Access
This webinar covered strategies for accessing to treatment for patients living with hepatitis C. Our panelists offered perspectives from their practices as a physician, nurse care coordinator, and case manager. Click here for access to the webinar slides and recording.

Template Letters of Appeals
The template letters below are offered to help with challenging health plan coverage denials of direct-acting antiviral (DAA) medication for people living with hepatitis C. The letters may be downloaded and modified for submission to health insurers.

 


 

Pharmaceutical Company Patient Assistance Programs

AbbVie Patient Assistance Foundation

Bristol-Myers Squibb Patient Assistance Foundation

Gilead Patient Assistance Program

Janssen Prescription Assistance Program

Merck Patient Assistance Program