NVHR Webinars Archive

 
 
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NVHR & Caring Ambassadors Program

Please join us for this late breaking webinar on Friday, February 18
at 12 PM PST/3PM EST.

Title: Hepatitis Advocacy At Home
Our elected officials have told us again that they want to hear from their constituents. They have set aside time at home to listen. It is up to you to speak. Learn what simple action steps you can take next week to help people living with hepatitis B or C.

About the Presenters
Corinna Dan, RN, MPH, is the Hepatitis B Fellow at the Association of Asian Pacific Community Health Organizations (AAPCHO).

Colin Schwartz, Colin Schwartz, Senior Associate, Viral Hepatitis/Government Relations National Alliance of State & Territorial AIDS Directors

Webinar Details:
To Register: https://caringambassadors.ilinc.com/register/vfmxsxr
Title: Hepatitis Advocacy At Home
Date & Time: 02/18/2011 at 12:00 PM Pacific Time/ 3PM Eastern Time
Duration: 1 hour(s)

 

National Alliance of State and Territorial AIDS DirectorsNational Viral Hepatitis Roundtable

New Media - What It Is and How to Get the Most Out of It

Meeting Description:

What do people living with hepatitis, community based organizations, local and state health departments and federal agencies all have in common? They are all using new media tools to connect, collaborate and create about viral hepatitis information and resources. This webinar will describe new media tools such as podcasts, RSS feeds, social networks, text messaging, blogs, wikis, twitter and much more that may be useful to you in your viral hepatitis work! Miguel Gomez, Director of AIDS.gov in the Department of Health and Human Services Office of HIV/AIDS Policy and Michelle Samplin-Salgado, New Media Strategist for AIDS.gov will present on everything you need to know to help you start developing a new media strategy, monitor your success, and/or add on to your new media skills.

New Media - What It Is and How to Get the Most Out of It
Date: Fri, Nov 12, 2010
Duration: 1 hour 30 minutes
Host(s): NASTAD & NVHR

Presenter Information:

Miguel Gomez

Miguel Gomez is the director of AIDS.gov, which directs visitors to Federal domestic HIV/AIDS information and provides practical guidance on how HIV/AIDS programs can use new media tools. Mr. Gomez introduced podcasting as a regular feature on AIDS.gov and also hosts a blog that showcases the use of new media for HIV prevention, testing, and treatment. Mr. Gomez has been working on HIV/AIDS issues since 1984 as an advocate at the Gay Rights National Lobby (GRNL), which provided services and support to some of the first AIDS service organizations in the nation. He has since held positions with national AIDS organizations and the Federal government. Mr. Gomez is the OS senior representative to the HHS Web Council.

Michelle Samplin-Salgado

Michelle Samplin-Salgado is the New Media Strategist for AIDS.gov and a consultant at John Snow, Inc (JSI). She is also a media consultant. Prior to her work at JSI, Michelle was the Communications Manager for the Harvard Center for Cancer Prevention, where she oversaw the award-winning website, YourDiseaseRisk.com. She co-instructs a course at Boston University School of Public Health, Designing and Evaluating Websites for Public Health Interventions. She has a Masters in Public Health from the University of Hawai'i and conducted HIV research in Hanoi, Vietnam. Michelle is fluent in Spanish and was a Peace Corps Volunteer in Ecuador.

Moderated by Colin Schwartz

Colin Schwartz is the Senior Associate, Viral Hepatitis/Government Relations for the National Alliance of State and Territorial AIDS Directors (NASTAD). In this role, he provides program and policy assistance to state health department viral hepatitis programs and advocates on their behalf with the Administration, Congress and Federal Agencies. Mr. Schwartz is actively involved in several national hepatitis advocacy coalitions including serving as the Coordinator for the Hepatitis Appropriations Partnership (HAP). He has policy experience in HIV and viral hepatitis, comprehensive sex education and sexual health, with expertise on Congressional Appropriations for public health programs.

Caring Ambassadors Program
Webinar Series

Webinar SeriesThe Caring Ambassadors Program in partnership with the National Viral Hepatitis Roundtable and Hepatitis C Advocates United is pleased to announce our new Webinar series. Each month we will be hosting an interactive educational webinar on viral hepatitis. We hope you will actively participate as we collectively augment our knowledge base from experts in the field.

Webinar: Hepatitis - Attitudes, Beliefs and Misconceptions

Hepatitis Attitudes Beliefs and Misconceptions Webinar for Web

In partnership with the National Viral Hepatitis Roundtable (NVHR), NASTAD hosted a webinar featuring Cynthia Jorgensen, DrPH, Team Lead, Education and Training - Prevention Branch, Division of Viral Hepatitis, Centers for Disease Control and Prevention. The webinar included results from CDC formative research and message testing with four different audience segments. Attitudes, beliefs and misconceptions were discussed as well as implications for viral hepatitis education and prevention messaging.

Leveraging the IOM Report on Viral Hepatitis

Webinar Audio and Slide Presentation: Leveraging the IOM Report

The National Viral Hepatitis Roundtable, in partnership with the Caring Ambassadors Program produced a webinar on January 12, 2010, for advocates to learn about the Institute of Medicine's Report on Viral Hepatitis.

About the Presenters

Daniel Church, MPH
Mr. Church is a member of the IOM's Committee on the Prevention and Control of Viral Hepatitis. He is the Adult Viral Hepatitis Prevention Coordinator and an Epidemiologist in the Bureau of Infectious Disease Prevention, Response, and Services at the Massachusetts Department of Public Health. He coordinates the statewide viral hepatitis program including disease surveillance, medical management services, counseling and testing programs, adult vaccination programs, educational campaigns for providers, patients and communities, and evaluation of projects. Mr. Church received his MPH in epidemiology and biostatistics from the Boston University School of Public Health.

Lorren Sandt
Ms. Sandt is the co-founder and Executive Director of the Caring Ambassadors Program. She has managed the Hepatitis C Program of the Caring Ambassadors Program since its inception in 1999. Lorren is a co-editor and a contributing author, to Hepatitis C Choices, 4th Edition, a one-of-a-kind, patient-centered book authored by a team of more than 25 multi-disciplined experts in hepatitis C. She has worked on policy changes at both the state and federal level since 2001. Lorren is the founder and past President of the National Hepatitis C Advocacy Council, Chair of the National Viral Hepatitis Roundtable, co-moderator of Hepatitis C Advocates UNITED, and a member of the Hepatitis C Appropriations Partnership.

Martha Saly
Ms. Saly is the Director of the National Viral Hepatitis Roundtable (NVHR). Martha manages NVHR's general operations and represents NVHR in a partnership with the National Alliance of State and Territorial AIDS Directors (NASTAD) under a cooperative agreement with the Centers for Disease Control. The partnership works to improve linkages and collaboration between viral hepatitis organizations around the nation.

Advocacy 101
Making the Most of Your Message

Slide Presentation and Powerpoint download click here

Learn how to be an effective advocate to help increase funding for viral hepatitis.

About the Presenter

Lorren Sandt - Executive Director, Caring Ambassadors Program Chair, NVHR

Ms. Sandt is the co-founder and Executive Director of the Caring Ambassadors Program. She has managed the Hepatitis C Program of the Caring Ambassadors Program since its inception in 1999. Lorren is a co-editor and a contributing author, to Hepatitis C Choices, 4th Edition, a one-of-a-kind, patient-centered book authored by a team of more than 25 multi-disciplined experts in hepatitis C. She has worked on policy changes at both the state and federal level since 2001. Lorren is the founder and past President of the National Hepatitis C Advocacy Council, Chair of the National Viral Hepatitis Roundtable, co-moderator of Hepatitis C Advocates UNITED, and a member of the Hepatitis C Appropriations Partnership.

 

Congressional Communications 101

Tips to increase the effectiveness of your message when communicating with YOUR elected officials in Congress and their staff.

About the Presenter

Jeremy Allen - Director, Government Affairs and Public Policy, Vertex Pharmaceuticals, Inc.

Jeremy Allen joined Vertex's Government Affairs and Public Policy department in June 2008. Prior to joining Vertex, Jeremy spent four years with Johnson & Johnson's Government Affairs & Policy department in Washington, DC. Jeremy held several positions of increasing responsibility at Johnson & Johnson, most recently as Director, Federal Affairs and Political Programs. In that role, Jeremy managed legislative and regulatory issues impacting Johnson & Johnson's pharmaceutical businesses. He also managed the Political Programs team, which included Johnson & Johnson's political action committee. Before joining Johnson & Johnson, Jeremy served as the Health Policy Coordinator for the House Energy and Commerce Committee. In this role he was Health Subcommittee Chairman Mike Bilirakis' key healthcare staff person, and he worked in tandem with the full committee staff on all aspects of the Health Subcommittee's legislative activities. Prior to joining the committee in June 2003, Jeremy served as Chairman Bilirakis' health policy advisor, where he advised the chairman on all aspects of healthcare policy.

 

The Next Generation of HCV Drugs

The HCV Pipline in PDF format

The standard of care for hepatitis C is changing; many new treatments are in development including new oral anti-viral drugs that block hepatitis C by targeting steps in the virus lifecycle. What can people expect from the next generation of HCV drugs? Who is likely to benefit from them? What are their potential pitfalls, such as additional side effects and drug resistance?

About the Presenter

Tracy SwanTracy Swan is Hepatitis/HIV Project Director at Treatment Action Group, where she oversees development of treatments for hepatitis C virus (HCV). She advocates for a broad and inclusive research agenda so that registration trials yield clinically relevant information and identify optimal standards of care for people with HCV. She pushes for early evaluation of HCV drugs in HIV/HCV coinfected people, and studies of HIV drugs in people coinfected with viral hepatitis. She develops and promotes policies to increase access to and quality of care for mono-and coinfected persons.

 

The Power of Many Voices: Your Role in State and Local Advocacy.

Presenters: Ryan Clary, Project Inform
Chris Taylor, National Alliance of State and Territorial AIDS Directors

2009 HCAU State Level Advocacy Presentation in PowerPoint format.

Local Advocacy Webinar in PowerPoint format

The Power of Many Voices
Hepatitis Advocacy at the State Level

Most hepatitis advocacy efforts focus on increasing federal appropriations and hepatitis specific legislation. While these efforts are important, advocates should also be working at the state level to increase funding for needed services. This presentation will include specific examples of how state advocates can utilize national advocacy materials for state level advocacy and strategies for increasing advocacy in your state. Also included will be the top 10 things state level advocates can do to make a difference.

 

Chris TaylorChris Taylor is the Senior Manager, Viral Hepatitis for the National Alliance of State and Territorial AIDS Directors (NASTAD). In this role, he provides support and technical assistance to state health department viral hepatitis programs, advocates on their behalf with the Administration, Congress and Federal agencies. He is actively involved in several national hepatitis advocacy coalitions, provides leadership as Chair of the National Viral Hepatitis Roundtable (NVHR), and is the North American delegate to the World Hepatitis Alliance. Mr. Taylor has 14 years of experience working in public health on viral hepatitis, HIV, STD, tuberculosis and immunization at the local, state and national level.

Local advocacy:

Advocating at the local level can be an effective way to secure funding for hepatitis prevention, testing, and care services. Many advocates have successfully established task forces at the city and county levels that work with local government on strategies to address hepatitis. This section will feature a recent success story in San Francisco and how a handful of people were able to convince the mayor to take a leadership role in fighting hepatitis.

Ryan ClaryRyan Clary is the Director of Public Policy at Project Inform. He advocates at the national, state, and local levels on HIV and hepatitis C policy issues. He is a co-founder of Hepatitis C Advocates UNITED!, a national grassroots coalition of advocates working to increase the federal government’s response to the HCV epidemic.